Offering Healthcare? The ADA, Section 504, and the Affordable Care Act Mean Accessible Telehealth, #HealthTech, and Content

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This is an article about the need to make healthcare accessible for disabled people. It was most recently updated in and May 2024. The updates talk about new rules and DOJ actions to improve healthcare access. The Americans with Disabilities Act (ADA) has long required healthcare providers to make their services accessible. In the digital age this means Telehealth that disabled people can participate in. It means prescription labels that talk. And medical information in formats like braille and accessible digital documents. It means Covid-related websites that people with disabilities can use. The law requires accessible healthcare in the digital age. This article has lots of resources about that.

Article updated

This article has been updated since it was first published on July 24, 2023. The most recent update was added on May 8, 2024. Read the updates for this article.

a stylized image to represent the intersection of health care and technology, with a stethoscope resting on a clipboard and a computer in the background with electronic imaging waves across the picture

I’ve written extensively about delays in finalizing accessibility regulations in the United States. Articles on this website about delays in web accessibility regulations and delays in kiosk regulations are two examples.

But federal agencies in the United States do far more than publish regulations. (Though you’ll read below that healthcare regulations aren’t immune from delay.) The federal government also educates the public and healthcare providers about existing laws that require digital accessibility in the healthcare space. And it enforces the ADA through settlements and other legal strategies.

The Americans with Disabilities Act is 33 years old this week (On July 26, 2023). The language of the Act and its original regulations require “effective communication” in healthcare settings. In the digital world, effective communication means digital accessibility.

And of course, at its core the ADA is a law that protects civil rights and prohibits discrimination. This too means including disabled people in all digital healthcare offerings. Disability organizations and disabled people rely on the Americans with Disabilities Act to protect their rights in digital healthcare environments.

Accessibility is inclusion. Failure to make healthcare technology and content accessibility is exclusion. Let’s celebrate the ADA by living up to its promises in digital healthcare.

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United States federal agency resources support digital healthcare accessibility

Federal agencies are not the buildings (or home offices) they operate from. If we’re lucky, agencies responsible for disability civil rights are comprised of people who do the hard work of enforcing federal laws, educating providers about their obligations, and informing people with disabilities about their rights.

Special shout out here to Steven Gordon, Civil Rights Enforcement Coordinator, Assistant US Attorney in the Eastern District of Virginia (part of the Department of Justice)  who helped write and compile many of the resources listed here and who also pointed me to other helpful resources. Thank you Steven.

The federal government’s work in accessible Telehealth stems from a long history of enforcing the Americans with Disabilities Act in the healthcare space. The Department of Justice ADA archives includes a page titled “Barrier Free Healthcare Initiative.” It lists (with links) over fifty settlements negotiated by the DOJ between 2011 and 2022 ensuring non-discrimination for disabled people in healthcare.

The DOJ announced the initiative with a press release on the 22d anniversary of the Americans with Disabilities Act in 2012.

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Disabled people use the ADA to stop exclusion (and protect health and safety) in digital healthcare settings

ADA enforcement is not just the task of the federal government. Meeting the promise of the ADA depends on the right of disability organizations and individual disabled people to enforce the law with lawsuits, agency complaints, and collaborative strategies like Structured Negotiation.

A recent example of this is a case brought by the National Federation of the Blind, Disability Rights North Carolina, and two blind individuals against the University of North Carolina (UNC) Healthcare System. The lawsuit was filed because UNC did not provide critical healthcare information (including after-visit summaries, medication instructions, and patient and billing information) in accessible formats including large print, braille, and accessible electronic format.

In 2022 the case was partially settled, as described in a press report titled UNC Health Care System set to pay $125K in damages for violating federal disability rights law.

In June 2023 the Judge issued a final 109 (!!) page order and injunction requiring UNC Health to ensure that its communications are accessible to blind patients. Read the June 2023 Court Memorandum Opinion and Order.

Hats off to Jessie Weber and other lawyers at Brown Goldstein & Levy and Disability Rights North Carolina for pursuing this important case over many years.

Another example of private ADA enforcement in the digital healthcare space is a consent decree (a form of a lawsuit settlement) with the federal Office of Personnel Management (OPM) and a blind federal employee. OPM agreed to that health benefit information would be accessible to blind federal employees, retirees, and other plan participants.

As Rachel Weisberg, one of the lawyers who worked on the case said in the press release announcing the settlement:

Everyone should be able to access their personal health insurance information privately and independently.

Privacy and independence: two critical reasons for accessible technology and content in the healthcare setting.

Talking prescription labels protect health

For more than a quarter century my clients, co-counsel and I have relied on the Americans with Disabilities Act to power the collaborative problem solving strategy called Structured Negotiation. The collaboration has helped solve a critical health and safety problem for blind people; prescription labels that are offered in standard print only.

Walmart was the first pharmacy chain to work with the American Council of the Blind (ACB), announcing in 2012 that talking prescription labels were available in 3 stores and through its mail order pharmacy. Today, Walmart makes accessible labels available at all its stores across the United States.

image of spoken rx from CVS website (the CVS app and prescription bottle)

And most recently, Structured Negotiation offered collaboration tools for CVS and the ACB to work together on prescription labels that are accessible to people who cannot read standard print.

In November 2021 CVS issued a press release titled Spoken Rx is the first in-app prescription reader to be developed by a national retail pharmacy. The Spoken Rx page on the CVS website starts with the line “Hi! It’s your prescription talking.”

In Structured Negotiation there is no finding of wrongdoing, no judge talking about ADA violations. Yet the sweeping civil rights law we celebrate each July 26 has been the foundation of every collaboration I’ve been engaged with for the past quarter plus century. Using the tools of Structured Negotiation to bring accessibility to prescription labels demonstrates the law’s potential to support technology that brings true inclusion to the digital healthcare space.

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The Affordable Care Act has non-discrimination regulations protecting disability rights too

Section 1557 of the Affordable Care Act prohibits:

discrimination on the basis of race, color, national origin, sex, age, or disability under any health program or activity, any part of which is receiving Federal financial assistance, including credits, subsidies, or contracts of insurance, or under any program or activity that is administered by an Executive Agency, or any entity established under title l” of the ActAffordable Care Act Section 1557

In 2020 the Department of Health and Human Services (HHS) issued regulations to implement this section. HHS’ summary of this rule includes this statement impacting digital accessibility of health programs covered by this law:

The final rule requires covered entities to make all programs and activities provided through electronic and information technology accessible; to ensure the physical accessibility of newly constructed or altered facilities; and to provide appropriate auxiliary aids and services for individuals with disabilities.HHS 2020 Summary: Final Rule Implementing Section 1557 of the Affordable Care Act

The Department of Health and Human Services is currently in the process of updating the 2020 non-discrimination regulations under Section 1557 of the Affordable Care Act. Like most efforts to adopt new regulations in the accessibility space, this effort has seen delay.

The Notice of Proposed Rule Making for the updated regulation was published in August, 2022 and the public comment period closed in October 2023. In its Fall, 2022 Unified Agenda the HHS said that the final rule would be published in March, 2023. It was good to read in that document that:

The Biden-Harris Administration has made advancing health equity and nondiscrimination in healthcare a cornerstone of its policy agenda.

But the March 2023 date came and went with no updated regulations for non-discrimination in healthcare under Section 1557..

Last month, the most recent HHS Unified Agenda, where federal agencies speculate about when things will happen, says the final rule will be published in September, 2023.

I hope it happens. I’m afraid it won’t.

More resources about Section 1557

Updates to this article

May 8, 2024 Update

On May 8 U.S. DOJ issued a press release titled “Justice Department Secures Agreement with Springfield Clinic to Make its Online Services Accessible for People with Disabilities

This is an agreement with a *private* healthcare company covered by Title III of the Americans with Disabilities Act. Under the agreement the company is required to make its “website, patient portals, and mobile applications accessible for patients with visual and manual impairments.” WCAG 2.1 Level AA is the conformance standard in the agreement.

The recently announced web and mobile accessibility technical standards for state and local governments in the United States (which is Title II the ADA do NOT apply to private entities like the one in this settlement. This announcement is yet another reminder that the ADA already, without technical standards, requires digital accessibility because it already prohibits discrimination and requires effective communication.

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May 1, 2024 Update

On May 1st the U.S. Department of Health and Human Services (HHS) issued a press release titled HHS Finalizes Rule Strengthening Protections Against Disability Discrimination. The Rule is officially titled Nondiscrimination on the Basis of Disability in Programs or Activities Receiving Federal Financial Assistance.

In summarizing the new Rule (also referred to as a regulation) the release states:

Reflecting over fifty years of advocacy by the disability community, the Section 504 Final Rule clarifies and strengthens civil rights protections for people with disabilities, addresses discrimination in medical treatment, adds enforceable standards for accessible medical diagnostic equipment, and ensures accessible web content and mobile apps. The rule advances the promise of the Rehabilitation Act and helps protect people with disabilities from experiencing discrimination in any program or activity receiving funding from HHS because of their disability.HHS May 1, 2024 press release

The release explains highlights of the new new Rule, including that it:

  • Prohibits the use of any measure, assessment, or tool that discounts the value of a life extension on the basis of disability to deny, limit, or otherwise condition access to an aid, benefit or service.
  • Defines what accessibility means for websites and mobile applications and sets forth a specific technical standard to ensure that health care and human service activities delivered through these platforms are readily accessible to and usable by individuals with disabilities.

Learn more here:

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April 26, 2024 Update

On April 26 the US Department of Health and Human Services (HHS) issued a press release titled HHS Issues New Rule to Strengthen Nondiscrimination Protections and Advance Civil Rights in Health Care.

This Rule (often referred to as a regulation/s) is the “final rule under Section 1557 of the Affordable Care Act (ACA) advancing protections against discrimination in health care.” (Section 1557 and its regulations are discussed in the main article above.) As described in the release, the rule “reduces language access barriers, expands physical and digital accessibility, tackles bias in health technology, and much more.”

The HHS release also offers an important reminder in an election year in the United States when it states that the rule:

exemplifies the Biden-Harris Administration’s ongoing commitment to health equity and patient rights. . and restores protections gutted by the prior administration and help increase meaningful access to health care for communities across the country.HHS Section 1557 April 2024 press release

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